Thank you very much for your great support. There are no words to describe the current emotional situation. We are overwhelmed by your sympathy for the fate of our Valeria and it is incredibly good to receive this financial and spiritual support from you.
It took 3 days and now we have already reached the donation amount! We never expected it to go so fast. With the collected CHF 900'000 it is now assured that the development of the drug for Valeria can continue.
We feel very strongly how the fate of our little princess touches your hearts. You still have the opportunity to support Valeria. The gofundme platform remains open. We had also planned further activities within the framework of the campaign, which we will definitely carry out in the future. Since it is not a standard therapy which Valeria is about to receive, the future costs for the treatment as well as the further course of therapy of Valeria are difficult to estimate at the present time.
The additional money will be used to cover future treatment costs. We hope very much that Valeria will be able to thank you all personally. We will continue to inform you about the history of Valeria through our NEWSLETTER.
Thank you for your support for our Valeria,
Alexandra & Mario Schenkel and Team Valeria #teamvaleria
The one-year-old Valeria from Horw (Lucerne) suffers from the very rare gene mutation KCNT1. About 100 cases are known worldwide. Due to the gene mutation, Valeria suffers several painful epileptic seizures every day. She cannot develop mentally or motorically.
However, there is a lot of hope for Valeria. Prof. Dr. Len Kaczmarek from Yale University (USA) and a team of neurogenetics are making a drug for Valeria that frees her from cramps and enables her to develop like other children. She will be able to laugh, talk and stand on her feet. The drug is expected to be available to Valeria this year, provided funding is secured.
The development of this unique drug is costly and time-consuming: 1.8 million Swiss francs. Personal savings and generous donations from relatives, friends, acquaintances and strangers have so far contributed half of this sum. 900,000 francs are still missing. Neither health insurance nor IV will contribute to this amount. Therefore, Valeria's family is dependent on YOUR support. Every donation is precious, no matter how small. Together we can do it!
We are a mixed team consisting of family and friends of Valeria. Our aim is to help Valeria with the therapy she so desperately needs. Therefore we have started the crowdfunding campaign "save Valeria". All the work we do is voluntary.
Nothing is impossible! Together we can do it!
"My voice for one life"
Under this title various charity concerts take place for Valeria.